The institution defines the care pathway once. The ecosystem builds each patient's schedule from the enrolment or intervention date, chases responses through the channels the patient uses (email, app, WhatsApp and others) and calculates the individual and global score in real time.
The care pathway holds the study design: which questionnaires, in what order, how many days from enrolment or intervention, with how much tolerance before an alert. When the patient is enrolled the whole schedule already exists — and chasing responses becomes the system's job.
Appointments, pending collections and deadlines from every centre in a single calendar. Pending items appear grouped by patient, with the response window visible before it closes.
Any instrument, built by the institution itself: single or multiple choice, numeric, date and text. Scoring rule, section grouping and legend are set in the configuration.
WhatsApp, email and SMS in the patient's language. The response link needs no username or password — each dispatch carries its own security key. There is also a collection chatbot, by text or audio.
Up to ten participants in the same call, in the browser, with no app and no login. The link goes out with the date and time through the channel the patient already uses.
View, save and delete permissions assigned by responsibility in the workflow. The institution decides whether one centre can see another's patients. Access with two-factor authentication.
One row per patient, one column per question, with a stable variable code and a legend. Ready for SPSS, STATA, Excel, programming languages or AI models.
Both articles describe the architecture, the collection method and the verification mechanisms that are in production today. Both in the International Journal of Medical Informatics, Elsevier.
Describes the database: a collection schedule generated from the enrolment or intervention date, automatic real-time scoring, per-patient dashboards, structured export and questionnaires in Portuguese, English and Spanish.
Read in the JournalDescribes the current ecosystem: communication by WhatsApp, email and SMS, a collection chatbot by text or audio, telehealth with no install, and authenticity and integrity verification by SHA-512 hash.
Read in the JournalAuthenticity and integrity are not a contractual promise. Every exported dataset carries a verifiable code: whoever receives the database checks its origin and content without depending on us.
Outcomes measured by care pathway, not just claims. Follow the covered population across providers and compare results using the same instrument.
Study design, collection schedule, dashboard and export in one place. Each database has its own code and participating centres linked to the coordinator.
Databases with verifiable integrity for dissertations, theses and publication. Collection in Portuguese, English and Spanish, with the language following the respondent.
Several centres, one health record. Authorisation profiles define who sees what, and the patient is registered once for all pathways.
Multicentre registries with a standardised instrument and active patient follow-up by WhatsApp, email and SMS, with no team dedicated to chasing responses.
Health record
PROMs
Scheduling
Patient
Care pathways
Research
